May 2011: All systems were go. MS in check. Family doing well. Oldest daughter, Ashley, gets accepted to start college at the University of Washington. Middle daughter, seeing success as a Ridgefield, High School cheerleader. The youngest, Jordan, being home schooled by Laura. We have found a good church and life is good.
Storm theory: You are either leaving a storm, in a storm, or heading for a storm.
Fasiculation - funny word. It means the muscles twitch. My left arm was twitching like crazy. It kept me up at night. It was like someone grabbing my arm and trying to get my attention. Oh, must be some residual effects of my multiple sclerosis.
I go see my MS neurologist at OHSU, Oregon Health Science University. She was the most capable neurologist I have had the pleasure to work with. Also, she was super cute! All in all, I was eager to see her and resolve this annoying twitch.
"The storm, she is coming ..."
My neuro examined me and had a quizzical expression. She did a series of tests and offered no relief. One month passes, I am in her office and she says something that I will never forget, she said, "Akhil, MS doesn't present itself with fasiculations. MS is a central nervous system issue. You are experiencing a peripheral nervous system problem. I suspect you have ALS!"
Amyotrophic Lateral Sclerosis or Lou Gehrig's disease. She told me to see a specialist that focuses on patients with ALS.
"Good luck, Akhil. I wish I had better news," were her last words.