Final Thoughts (Summary)

11/13/2012

"What you think about, you bring about."
- Mary Kay Ash

            To catch you up and not make you read all my posts: Basically, I have both Multiple Sclerosis and Amyotrophic Lateral Sclerosis or ALS.

Since my diagnosis on July 28, 2011 here are the issues I am dealing with:
1. Walking is very difficult.
2. My arms are weak.
3. I use a walker to move around.
4. Falling is a reality (I have fallen 23 times).
5. Breathing is difficult.
6. My tongue muscle is atrophying making speech challenging.
7.  Simple tasks like dressing, undressing, and showering are not possible.
8. Laura is my constant care taker and it is quite a job.
9. I have lost 17 pounds (I don't recommend ALS as a weight loss plan!).
            This is one of the most dangerous issues with ALS patients
10. Travelling is too challenging and I don't travel.

            POWER, the company I work for, recognized my situation and modified my job. I don't have to travel and am allowed to work from home.

            My latest doctor visit resulted in the prediction that in six months I will be in a wheelchair, but the doctors have been wrong before!

            All that sounds bad, right?

            Remember, I am an exception.

            If anyone can beat this prognosis, it is me!

2 Comments

Shaparak

12/10/2012 02:28:01 pm

You are an exception. You have done it in the past and you will do it again. Show the docs that they do not always get it right :-)

Michael Knobeloch

2/26/2015 09:06:05 pm

Akhil,
I'm not sure you'll remember me but we were classmates at SIUE in electrical engineering. A while back I googled you to see what you've been up to and discovered you had MS and ALS. I'm not on Facebook or LinkedIn so I'm not able to connect to you directly through social media. I read through your postings on this site and have watched several of your YouTube videos and wanted to let you know I am praying and rooting for you. If anyone can beat this horrible disease it's you because you are an "exceptional" person (to quote you and one of your doctors). Your family is exceptional as well, beautiful and very musically talented.
Here are a few things I remember about you. I recall you have a sister named Uma <sp?> who was a chemistry major. I was a double major, EE/chemistry, so your sister and I shared some chemistry classes together while you and I shared EE classes. I remember Uma had to drive you to school your freshman and sophomore year because you were too young to drive. Not only did you impress me by your intelligence (child prodigy), but you had an infectious laugh and always had a smile on your face. I even remember what you did for your senior engineering project. You designed and built a control module that plugs into a home outlet and used to turn a lamp off/on remotely from a Commodore 64 computer. We hung around the same group of people, and we used to trade Commodore 64 programs on floppy disk. About 10 years after we graduated (mid-1990s) I remember running into you, of all places, the Scranton Pennsylvania airport. We weren't able to talk that long because we both had flights to catch.
Anyway, I want you to know I'm in your corner and I'll continue to pray for you and your family. Keep up the fight!!

Pushing Through...

Final Thoughts (Summary)

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Akhil Jhaveri

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