June 2011 - It was night time and my left arm was twitching, kind of like sometimes when your eye twitches. It was annoying but I knew it would go away. Two weeks later it hadn’t stopped so I went and saw my neurologist because I had MS and I thought this was just another flare up.
My doctor said, “MS attacks the central nervous system. What you are experiencing is a peripheral nervous system issue.” I asked, “What does that mean?” The doctor replied, “You need to go see a specialist. Her name is Doctor Goslin.”
My doctor said, “MS attacks the central nervous system. What you are experiencing is a peripheral nervous system issue.” I asked, “What does that mean?” The doctor replied, “You need to go see a specialist. Her name is Doctor Goslin.”
July 28th, 2011 - after meeting with Doctor Goslin for a month, she told me that she suspected that I had ALS. Surprise!
I had just met my Goliath. He walked into the room and threw down the gauntlet. He dared me to pick it up and take him on.
Fast forward 2 and a half years. My health has deteriorated. My speech is barely intelligible. I’ve lost the ability to feed myself or even take care of the most basic hygiene needs. I’m relegated to a power wheelchair whenever I’m awake. I need to be turned in bed throughout the night because I can’t even move myself. Many times I have wanted to quit, end my life. To basically stop being me. I’m done….. I have contemplated using Death with Dignity (DWD). It seems like the best thing to do. I’m getting more broken…
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I had just met my Goliath. He walked into the room and threw down the gauntlet. He dared me to pick it up and take him on.
Fast forward 2 and a half years. My health has deteriorated. My speech is barely intelligible. I’ve lost the ability to feed myself or even take care of the most basic hygiene needs. I’m relegated to a power wheelchair whenever I’m awake. I need to be turned in bed throughout the night because I can’t even move myself. Many times I have wanted to quit, end my life. To basically stop being me. I’m done….. I have contemplated using Death with Dignity (DWD). It seems like the best thing to do. I’m getting more broken…
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A young mother wanted to encourage her 5 year old son to learn the piano. A polish composer was coming to town. He was a master composer named Paderewski. In order for the mom to encourage and inspire her son, she purchased tickets to the performance.
The evening came and they went to see the great Paderewski perform. After they found their seats, the mom spotted some friends. She turned to the son and said, “Wait here, I’m going to say hello to some friends of mine.” The moment the mother stood up and began to walk towards her friends, the boy wasted no time in looking for something to do. He found that something in the form of an exit door.
The lights dimmed and the mom came back to her seat only to find that her son was gone. She was looking around for him when the curtain opened up and on the stage was a grand piano with lights on it. There for all to see was her 5 year old son playing twinkle twinkle little star with one finger. Obviously, the mom was aghast.
When Pederewski came walking out behind the boy, the boys first inclination was to run off scared but Pederewski quickly told him, “Don’t stop playing. No matter what keep playing.” Then the master put one arm on each side of the boy and played a counter melody. Together they made the most beautiful music. Music that enthralled and impacted the entire audience. When they were done, the little boy received a standing ovation.
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The evening came and they went to see the great Paderewski perform. After they found their seats, the mom spotted some friends. She turned to the son and said, “Wait here, I’m going to say hello to some friends of mine.” The moment the mother stood up and began to walk towards her friends, the boy wasted no time in looking for something to do. He found that something in the form of an exit door.
The lights dimmed and the mom came back to her seat only to find that her son was gone. She was looking around for him when the curtain opened up and on the stage was a grand piano with lights on it. There for all to see was her 5 year old son playing twinkle twinkle little star with one finger. Obviously, the mom was aghast.
When Pederewski came walking out behind the boy, the boys first inclination was to run off scared but Pederewski quickly told him, “Don’t stop playing. No matter what keep playing.” Then the master put one arm on each side of the boy and played a counter melody. Together they made the most beautiful music. Music that enthralled and impacted the entire audience. When they were done, the little boy received a standing ovation.
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How does that relate to me and my struggle with ALS? Don’t you see? I’m playing this broken music. I want to run away and just stop. But then I hear the master saying, “Don’t stop. Don’t quit playing.” He puts his arms around me and together we play the most beautiful music.
When it is all said and done, we will have created something that will impact the world. And who knows, it might even be worthy of a standing ovation. You never know what kind of impact you will have on a world that is watching.
For we are his workmanship, created in Christ Jesus for good works, which God prepared beforehand, that we should walk in them. Ephesians 2:10
When it is all said and done, we will have created something that will impact the world. And who knows, it might even be worthy of a standing ovation. You never know what kind of impact you will have on a world that is watching.
For we are his workmanship, created in Christ Jesus for good works, which God prepared beforehand, that we should walk in them. Ephesians 2:10
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