Keeping up with the Jhaveri's (Part One of Three)

Over the past several months, Marissa Harshman and Ariane Kunze have been spending a lot of time with me and my family.  They are two beautiful young women, so of course, I loved having them in my home! 

They were tasked with following my family in order to write a story about ALS and hospice care.  I hope that what started out as an assignment turned into a life-changing experience for them because they were exposed to all the intimate details of our lives as we cope with ALS. 

Marissa and Ariane have compiled those months of videos and interviews into a series of articles for The Columbian.  It was hard for me to watch the videos and read the articles because when I think of myself, I still see the old Akhil.  They destroyed my illusion of what I think I look like; they portrayed a stranger.

I HATE all of it!

I have heard that even though it is sad to watch our story unfold, it is still inspiring.  I hope you will embrace my message of faith, hope and love as you read it.

Please go to the following link for the first article and video of the three part series:  http://www.columbian.com/projects/2015/11/29/living-with-als/

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