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Keeping up with the Jhaveri's (Part One of Three)

11/30/2015

1 Comment

 
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Over the past several months, Marissa Harshman and Ariane Kunze have been spending a lot of time with me and my family.  They are two beautiful young women, so of course, I loved having them in my home! 

They were tasked with following my family in order to write a story about ALS and hospice care.  I hope that what started out as an assignment turned into a life-changing experience for them because they were exposed to all the intimate details of our lives as we cope with ALS. 

Marissa and Ariane have compiled those months of videos and interviews into a series of articles for The Columbian.  It was hard for me to watch the videos and read the articles because when I think of myself, I still see the old Akhil.  They destroyed my illusion of what I think I look like; they portrayed a stranger.

I HATE all of it!

I have heard that even though it is sad to watch our story unfold, it is still inspiring.  I hope you will embrace my message of faith, hope and love as you read it.

Please go to the following link for the first article and video of the three part series:  http://www.columbian.com/projects/2015/11/29/living-with-als/

1 Comment
Bill Caudill
11/30/2015 08:22:45 pm

Laura and Akhil are two beautiful and inspiring people. The grace their family demonstrates is a whiteness to the love God has filled their hearts with. I'm blessed to know them.

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    The video is Akhil's journey with ALS.  Painful to see but the faith his family shows is uplifting.
    ​
    God continues to show his love for us through his people.  Thank you to everyone who has reached out to us, prayed for us, visited Akhil, brought us a meal and served us however God led you to serve.  Continue to follow those urgings from God in serving those who are struggling.

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    Akhil and Laura Jhaveri

    Applying the skills they've learned in over 20 years of marriage, this couple faces the challenges of ALS together. MND or motor neuron disease is deadly with no known cure.  The Jhaveri family has to endure this battle and show the world God's love!

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