Me and ALS
  • Home
  • Akhil
  • Laura
  • About Us
  • History
  • Help!
  • Health Update
  • Videos

I'm back (kind-of)

1/6/2014

18 Comments

 
Picture
In June of 2013, I lost the ability to type. My ALS is progressing (that is a bad thing). I have also lost the ability to raise my arms. And to add to the entertainment package, my speech is also deteriorating. 

I basically wanted to give up . . . and I did. What is the use of going on. It is obvious that I am worthless.  So I laid in bed and felt sorry for myself.  I was justified in that feeling and no one was going to tell me anything to change my mind. I was having a grand old time with my pity party.

Fast forward to New Year's day, a day when our family sits around the table and makes New Year's goals. At this moment, my family asked me what I was planning on doing. I wanted to lay down and die, that was my goal. But I couldn't do that. So instead I decided to act bigger than I felt.  You know, fake it 'til you make it.

So I thought about some goals and I decided that it would be a good idea to update my blog, but how? And then a Beatle's song came to mind. "I get by with a little help from my friends." 

Picture
I have a dear friend that comes to visit me every Monday. Her name is Lori. (That is Laura in the picture, not Lori, but you get the idea).  She is the one who is typing this for me, putting up with my slurred speech and her own computer challenges. We make a perfect pair. Testing each other's patience and that is perfect.

So Lori and I will keep blogging every week. No more feeling sorry for myself, no more laying down and dying. I am reminded that if I am not dead then I am not done. It also gives Lori and I an opportunity to have some fun with each other and enjoy each other's company.

I hope that this inspires you. You may want to give up or you may want to quit, but trust me, God has a plan for you.

As for me: I'm back!

"Dear brothers and sisters, when troubles come your way, consider it an opportunity for great joy. For you know that when your faith is tested, your endurance has a chance to grow. So let it grow, for when your endurance is fully developed, you will be perfect and complete , needing nothing." James 1:2-4

18 Comments
Grace
1/6/2014 08:35:21 am

So glad you're back. I missed reading your encouraging posts. Don't ever give up!!!!!!! (((((HUGS)))))

Reply
Chadd
1/6/2014 08:45:02 am

Great to hear from you. Glad you're moving and motivated. Your mind is still sharp, let's have some of that Indian accent with sharp wit in these post!

Reply
Jennifer
1/6/2014 09:09:16 am

Good to read and see your new entry. Your family is an inspiration to everyone. It's obvious that you each possess strong faith, devotion, and love. Prayers and love from the Churchwells!

Reply
Sue Simons
1/6/2014 09:12:31 am

There is special equipment that might be of assistance for you. I'm not sure what it's called but I know there is a tube you blow into and it types for you; I assume your aide might be able to find it for you. I've seen them used more for people with spinal injuries. I hope that will help make you feel more useful; I certainly understand the feeling of giving up and feeling useless! Please try to find ways to use what you still have - that marvelous mind that God blessed you with! Satan is pushing you hard, don't let him win!

Reply
Jason Christensen
1/6/2014 09:30:26 am

That's is amazing to hear. You are truly an inspiration to so many of us. I count myself as one of the lucky ones to be blessed enough to know you and be inspired by all of your amazing words.

Reply
Sharyn Krazer
1/6/2014 10:52:18 am

You have a contagious smile and a beautiful soul!

Reply
Paul B
1/6/2014 11:20:01 am

Ahkil you are such an inspiration. You don't how many lives you are touching. Thank you for not giving up. I love you brother.

Reply
Linda McNeley
1/6/2014 12:05:40 pm

I am so thankful that you are not giving up, Akhil. God is using you every day to help the rest of us.You have touched so many of our lives and have given us hope when we think we are beaten. I only know you thru my daughter, Patricia and all your wonderful videos and blogs, and I can honestly say that I love you dearly and I thank God for the blessing of YOU every day!

Reply
Melissa Kolb
1/6/2014 01:06:52 pm

Lori & I go way back...and ALS has plagued my Dad's side of the family for generations...13 individuals, the last being my young Uncle Tom. I researched ALS in nursing school...it has always caught my attention. I rewatched Facing the Giants last night & was so impressed by the coach's ability to praise God if they won & praise God if they lost. Kudos to you for praising God in what seems to be a loss, but what He'll turn into a victory!

Reply
Patricia
1/6/2014 02:01:39 pm

Your transparency and your willingness to share your struggles and your triumphs with us is such a gift, Akhil. We're praying for you everyday, and we're so blessed by your incredible spirit and your words! Thanks to Lori for her help with your blog - We're glad you're back!

Reply
Barb
1/6/2014 02:02:54 pm

So glad to be reading this, Akhil and Lori. I love you both and the rest of your families!

Reply
Ashley
1/6/2014 02:12:45 pm

I'm so happy to read this(: I love you, Dad. You've still got work to do :P

Reply
Linda McNeley
1/6/2014 09:07:28 pm

Reply
Alton
1/7/2014 11:22:54 am

We love you and Laura, Akhil. I am grateful for every day we spent together and every day we can still stay in touch. Keep broadcasting! All my love to your beautiful family.

Reply
Valerie Lavely
1/8/2014 02:16:57 am

Hello Akhil, " not dead not done" reminded me of your three legged stool" :) - -Whatever works! Keep MINDFUL of His TRUTH. You + God remind us of the importance of remembering. I always enjoy hearing/reading how You and God engage! I'm interested in hearing about the cruise, chess tournaments etc. Post some pics - worth 1000 words - tell us how to be praying for you - or . . . leave it to our own creative intercession.:) Much love, Val and . . . Judy

Reply
Phil Camden link
1/9/2014 06:35:47 am

Hi Akhil. Thanks so much for your courage and strength to come back, you where missed. blessings and grace.

Reply
Matt
1/9/2014 09:48:22 am

Akhil you are an inspiration. Stay strong, and know that you have touched so many lives with your courage.

I'm sure you've already explored this, but just in case, here is a link to somebody you remind me of, Dr. Oster.

http://healingwithdrcraig.com/the-man/

Reply
Susan
1/13/2014 04:11:25 am

You are such an inspiration Akhil!

Reply



Leave a Reply.




    The video is Akhil's journey with ALS.  Painful to see but the faith his family shows is uplifting.
    ​
    God continues to show his love for us through his people.  Thank you to everyone who has reached out to us, prayed for us, visited Akhil, brought us a meal and served us however God led you to serve.  Continue to follow those urgings from God in serving those who are struggling.

    Picture

    Akhil and Laura Jhaveri

    Applying the skills they've learned in over 20 years of marriage, this couple faces the challenges of ALS together. MND or motor neuron disease is deadly with no known cure.  The Jhaveri family has to endure this battle and show the world God's love!

    Archives

    September 2018
    August 2018
    July 2018
    April 2018
    December 2017
    September 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    January 2017
    December 2016
    November 2016
    October 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    April 2014
    March 2014
    February 2014
    January 2014
    October 2013
    July 2013
    June 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012

    RSS Feed

    Enter your email address:

    Delivered by FeedBurner

    About Akhil

    His journey is described in the "ALS and Akhil " tab

    HTML hit counter - Quick-counter.net
Powered by Create your own unique website with customizable templates.