Me and ALS
  • Home
  • Akhil
  • Laura
  • About Us
  • History
  • Help!
  • Health Update
  • Videos

Hey Akhil, it's me, Akhil!

10/14/2014

9 Comments

 
Picture
"I'm sure you have been enjoying all your health, especially after the ordeal you have endured.  I wanted to remind you of what it was like, because I know how easy it is to forget the bad times. I know the mind blocks painful memories by simply suppressing them. I think it is important to carry the miracle of your healing with all of its pain.  

"Let's start at the beginning. You were diagnosed with ALS in July of 2011. You rejected that diagnosis. Maybe that was just denial, but regardless, your health declined. You foolishly continued to work until December of 2012. 

"Fortunately, you took a vacation with your family, a cruise. It was fortunate because you were healthy enough to enjoy the time with your family. I want to remind you that it was the last trip that you would take without assistance. I want to remind you of the pain you felt when you realized that independent travel was over.

Picture

"In December of 2012, a lot of things happened. You realized you could not drive anymore without having an accident. You also realized it was time to leave your job. Remember how hard it was to tell your boss that you were leaving? Remember what it felt like to tell your team goodbye?  These are people that you lived with, mentored, and went to battle with. All these people were family and all of them were sad to see you go. You were saying goodbye to independence.

"Your company did a great thing for you. They took care of you and made sure your family was well looked after. Even Jack Hand, your CEO, personally gave you assurance that all would be well. Good news, they lived up to their word.

"Then the struggle began. for some reason your health declined rapidly. Your hands stopped working and your legs started getting weaker.  Every time you spoke, you felt as though you had a frog in your throat. You couldn't say certain sounds anymore and it frustrated you. Only people close to you were able to understand you. You had a couple of caregivers that were taking care of you during the day, but as time wore on they got worn out. I remember you praying for someone to take care of you because now you needed care 24 hours a day!

Picture
"This person had to be very special. It had to be a man because you needed to be showered and helped with all your toiletry needs. I'm sure a woman would have been fine, but I think it would have been awkward.  Also he had to be very caring and Christian. Those two qualities were non-negotiable.  Enter God.  My daughter Corinne put a message out on Facebook asking for help. No qualifications, just help. That's how Russell got here!

"Russell lived in Ridgefield and was only a mile from your home. He had been unsuccessfully searching for a job for four years. He comes to your home, hoping to get a job and made the most outlandish statement during the interview, 'You are going to be healed, Akhil!'  At that moment you did not know if this guy was a lunatic or a gift from God. Fortunately for you, he did not turn out to be an  axe wielding murderer. 

"His whole family turned out to be very strong believers in supernatural healing. I want to remind you that it was Russell's family that pulled you through your times of doubt. God knew you could not take this journey alone and He took care of you.  There were many times when you wanted to quit.  And by quit I mean suicide. Remember how lonely you felt even though you were surrounded by people. People tried to make you feel better by saying they were praying for you, yet nothing good was happening. At least, nothing was happening as far as you knew.  God was doing things in the background and he was waiting for you to have a little faith. 

Picture
"All along you thought the battle was with your body, wrong!  Your real battle was in your mind.  Remember how at one moment you were fine and a thought comes to you, 'You can't move. You will never be able to move!' 

"You panic. You can't explain it to anyone. No one will understand, so you just sit there, sweating. Nothing has changed yet you are covered with perspiration. The words of Paul came to your mind, 'our battle is not with flesh and blood, it is with the powers and principalities of this world.'

"You understood what that meant. You're not fighting with your body, you're fighting with the demons of your mind. This was especially bad at night. Fear gripped you and wouldn't let go, You were afraid of being alone, afraid you couldn't call out, afraid you would suffocate.


"Remember how you overcame this? You gave into your fear for one minute, and then you started focusing on your breathing. In out, in out, in out. You did that until you started focusing on what you were grateful for. At the top of the list,  your family, Russell's family, your friends, and finally you were back to normal. You call this exercise 'mental gymnastics'.

"Your mind was your biggest enemy and your biggest ally. In order to survive you had to discipline your thoughts, and become ruthless with eliminating damaging ideas. Its not as easy as one would think, right? But you made it!   

Picture
"Finally you made some promises to yourself. I want to list these promises for you incase you have forgotten. 
  1. You were going to teach/preach about the goodness of Jesus. 
  2. You were going to setup a ministry for healing others. 
  3. You were going to take your family on another cruise, without any assistance! 
  4.  You were going to continue with your blog. 
"Did you do all these things, Akhil? Did you remember how you felt? Did you remember how you wanted to do the most basic things for yourself, but couldn't? 

"Akhil, I don't know where you are today. I do know that God loves you and has always had big plans for you. These plans scared you and you wanted to press the eject button but God was with you.  Say, ' hi' to Russell and his family for me. Remind them how they were part of the miracle!"

No, I am not schizophrenic.  I know that I am going to be healed. And I do not want to forget what it felt like to have ALS. I wanted to write a letter to myself to capture the experience. Maybe some of you can get an insight into what is going on in my mind right now. Maybe some of you can benefit from my positive thinking. Or, maybe not :-)

Tell me what you think, I am curious. And by the way, if you could give your future YOU advice, in two or three words, what would it be? For me it would be, be grateful!

"...the God who gives life to the dead and calls into being things that were not." 
Romans 4:17 

9 Comments
Kristi
10/14/2014 11:08:18 am

Be patient

Reply
Linda
10/14/2014 02:17:41 pm

I have never and will never ever be alone.

Reply
Sharyn Krazer
10/14/2014 03:38:26 pm

Be still&know that I AM GOD!

Reply
Melissa
10/14/2014 04:16:19 pm

Fascinating to read what your mind has been going through as your body is less and less under your control! Thank you for sharing...I was too young & not very close to my Uncle when he died from ALS. I am so encouraged to keep growing closer to God when I read your blogs...to allow my heart & mind to be released to God's ways!

Reply
Mylissa Boyd
10/15/2014 05:03:18 pm

To trust God's plan for my life.
Thank you Akhil for your wisdom. I'm learning so much from you.

Reply
Tricia Reinhart
10/15/2014 10:09:32 pm

My YOU advice to me is: Go where God needs me, and be his example of love. As I'm retired now, I want to now use this time for HIM. " Lord make me an instrument of thy peace."

Reply
Lori
10/16/2014 03:44:58 am

Be intentional!

Reply
Kim
10/17/2014 07:53:26 am

Akhil, by the grace of God I came across your email (which is whole other story of its own). Your words and your faith have inspired me to renew my relationship with the Lord. I had started to lose my way, and you are helping me see the path more clearly again. Akhil, you have a purpose, and despite your limitations you are greatly impacting lives in a way that many of us without such limitations do not…and in a way that you can't even know. I wasn't planning to comment, but I thought it was important for you to know how far you are reaching and how important your message is. I am praying for you and your family.

Reply
Kim
10/17/2014 10:26:29 am

I'm sorry, I meant "blog" above (not email). Also, I wanted to ask that you pray for me…that I may develop a heart as beautiful as yours and that I might guide my young children to live their lives as He would want them to. Thank you again.

Reply



Leave a Reply.




    The video is Akhil's journey with ALS.  Painful to see but the faith his family shows is uplifting.
    ​
    God continues to show his love for us through his people.  Thank you to everyone who has reached out to us, prayed for us, visited Akhil, brought us a meal and served us however God led you to serve.  Continue to follow those urgings from God in serving those who are struggling.

    Picture

    Akhil and Laura Jhaveri

    Applying the skills they've learned in over 20 years of marriage, this couple faces the challenges of ALS together. MND or motor neuron disease is deadly with no known cure.  The Jhaveri family has to endure this battle and show the world God's love!

    Archives

    September 2018
    August 2018
    July 2018
    April 2018
    December 2017
    September 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    January 2017
    December 2016
    November 2016
    October 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    April 2014
    March 2014
    February 2014
    January 2014
    October 2013
    July 2013
    June 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012

    RSS Feed

    Enter your email address:

    Delivered by FeedBurner

    About Akhil

    His journey is described in the "ALS and Akhil " tab

    HTML hit counter - Quick-counter.net
Powered by Create your own unique website with customizable templates.