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Father’s Day Gifts from ALS

6/18/2017

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​Father’s Day 2017
Father’s Day has always been a day of fun and celebration since our first child, Ashley, was born in 1993. I helped Ashley make handprint crafts to show her adoration for her father.  As our family got larger with the arrivals of Corinne and Jordan, the celebration got bigger.  When the girls were small, I helped them make gifts, put on plays and performances showing their dad how special he was.  As the girls got older, they thoughtfully came up with ways to honor their dad.  It has grown into a friendly, and sometimes fierce, competition of who came up with the best gift.  They have serenaded him with songs, created parodies and presented amazing art projects all to show Akhil that he is a special dad.  (The video below is a birthday song but this is the type of "gifts" we give.)

As ALS has stripped Akhil of so many abilities, I wondered if it had also stripped Akhil of the ability to be a dad in the eyes of our girls.  In talking to them and as they celebrate him today, they make it quite clear that Akhil is still their dad and fills an important role in their lives. 
While there are things Akhil cannot do, there are many things crucial to a good relationship that he can do; things that I consider gifts from ALS.  The disease has taken away Akhil’s ability to hug his daughters but he can express his approval, admiration and love for them with his facial expression. The girls can see the joy radiating from his face and they know they have made him proud.  On the flip side, there is no need for verbal chastisement when they need correction as Akhil can express all he needs to say with a look.  ​
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Proud Akhil
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Disappointed Akhil
​ALS has taken Akhil’s ability to speak but he can still communicate using his eyes to spell out words.  When he “speaks” his words have been carefully selected.  There are no words spoken out of anger or impatience that he regrets (as may be the case with some of us).  Every word is carefully thought about and each message delivered concisely to conserve his energy.  We all know that when he “speaks” he is passing on a nugget of wisdom or something very important to him.
ALS has taken Akhil’s ability to work.  Prior to ALS, Akhil was immersed in his career and travels frequently took him away from the family.  He missed out on concerts, recitals and relationship-building moments because of his job.  Now that he is not working, he is always available.  The girls come to him and recount the goings-on of their days, something he was not part of when he was working.  Most importantly, he has been given the gift of time, time to listen, really listen to his children without other obligations pulling at him. 
While ALS has taken a lot from Akhil, it has given to him as well.  Akhil has been given time to build relationships with his daughters.  He knows them better now than before he was sick because he has time to listen and they seek him out to talk to him.  They feel closer to their dad as a result of the constant communication with him.
ALS has given us a bit of a glimpse of our heavenly Father through Akhil.  Like Akhil, He is always there for us, patiently listening to us voice our every thought from the trivial to the life-changing.  Just as the girls feel close to Akhil the more they talk to him, so too, do we feel closer to God the more we talk to Him.  We feel Akhil’s love for us even though he can’t express it verbally or physically, just as God’s love.  It is a silent love that we can rest in knowing is there.
This Father’s Day, we recognize that gifts aren’t always in the form we expect.  There can be joy in times of hardship and sadness.  When it seems things in life are being taken away, chances are, things are also being given - we just have to look for them.
 
 
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    The video is Akhil's journey with ALS.  Painful to see but the faith his family shows is uplifting.
    ​
    God continues to show his love for us through his people.  Thank you to everyone who has reached out to us, prayed for us, visited Akhil, brought us a meal and served us however God led you to serve.  Continue to follow those urgings from God in serving those who are struggling.

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    Akhil and Laura Jhaveri

    Applying the skills they've learned in over 20 years of marriage, this couple faces the challenges of ALS together. MND or motor neuron disease is deadly with no known cure.  The Jhaveri family has to endure this battle and show the world God's love!

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