"Congratulations! You are our youngest graduate from this High School. " I heard those words when I was 15 years old. Three months later I started college. Four years later at 19, I had my Electrical Engineering Degree. Three months later, I got my first job as an engineer for General Motors! I was in control. Ha ha!
I was caught in the illusion.
Fast forward about 30 years.
“Akhil, unfortunately after all my testing I have news for you. You have ALS.” I heard those words on July 28, 2011. I immediately dismissed it. I felt fine, just some twitching in my left arm. Nonetheless, I researched ALS and what it would do to me if I actually had it, WHICH I DID NOT!
I was caught in the illusion.
Fast forward about 30 years.
“Akhil, unfortunately after all my testing I have news for you. You have ALS.” I heard those words on July 28, 2011. I immediately dismissed it. I felt fine, just some twitching in my left arm. Nonetheless, I researched ALS and what it would do to me if I actually had it, WHICH I DID NOT!
As I read, I could not believe what ALS does to a person. It read like a nightmare, unbelievable!
Three years and two months later, I am living the nightmare. Ever have a dream where you cannot move and the monster is coming to get you?
In my life when I open my eyes as I awake, ALS is coming after me and I literally cannot move! Like I said, I am living the nightmare.
Below is a video of what every morning looks like for me.
If you know me, you know I’m a type A personality. Always on the go and completely independent. The other day my cell phone rang, my caller ID said it was my Mom.
I could see the phone, it was inches from my fingertips but I could not answer the phone because my hands have stopped working. Also my fingers don’t move at all.
Maddening!
Imagine the frustration, the rage, the depths of depression I am constantly battling. What am I supposed to do? How do I keep from going insane? How do I stop the demons from destroying my soul?
I am reminded of a story. There was a young sailor on an old time clipper ship. The seas began to rage and the crew was afraid that the ship would hit some rocks. So the captain told him to climb up to the crow's nest to scout for land. The sailor thought that the movement while on the mast would make him fall. The captain, noticing that the sailor was struggling, told him to look up to the sky. When the young man changed his focus from the sea to the sky, he was able to make it up to the crow's nest without a problem.
Why is this story important? It show us that when we are struggling, we are focused on the problem. And remember, what we focus on grows large. Instead of looking at the problem, look upward for the solution.
There’s only one thing I know to do. Run to my Savior and ask him to quiet my soul. Then He reminds me of what He has done for me. He reminds me that I have won!
With that said, my oldest daughter Ashley has given me a gift with her voice. That is the gift I am sharing with you. Really listen to the words as they are very powerful.
"Savior I come, quiet my soul." Imagine that you can run to your Savior and He will give you rest. Suddenly you realize you have true control, not the illusion.
Enjoy this four minute video that should make you smile!
There’s only one thing I know to do. Run to my Savior and ask him to quiet my soul. Then He reminds me of what He has done for me. He reminds me that I have won!
With that said, my oldest daughter Ashley has given me a gift with her voice. That is the gift I am sharing with you. Really listen to the words as they are very powerful.
"Savior I come, quiet my soul." Imagine that you can run to your Savior and He will give you rest. Suddenly you realize you have true control, not the illusion.
Enjoy this four minute video that should make you smile!
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