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11/17/2012

    I was really struggling to get out of bed. My legs wouldn't move. Try as hard as I could, they wouldn't budge. I told them, "We have to go to the bathroom, why don't you MOVE?" They stared back at me saying, "We are legs, we don't talk!"

    After the struggle ended (Laura helped me!) I was checking my email when I got a timely video from my daughter Ashley. She covered a song  with her friend Luke. As I listened to the words, they made me think of something ... SAD and GOOD!

    The song: Pocket Full of Sunshine by Natasha Bedingfield

The words that caught my attention:

            Take me away, a secret place
            A sweet escape, take me away
            Take me away to better days
            Take me away, a hiding place

            There's a place that I go that nobody knows
            Where the rivers flow and I call it home
            And there's no more lies in the darkness; there's light
            And nobody cries, there's only butterflies

Sometimes, actually all the time, I wish I could go to a "secret place" and enjoy better days.
A place where nobody cries, there's only butterflies.

Then the tears came. Reality hit. My body is withering away. There are no butterflies.
I saw my youngest, Jordan. I wondered if I would be able to celebrate her 13th birthday with her?
Who will take care of her?
Why is this happenning?
Why?

The good: The lines that pulled me out of my spiral
            The sun is on my side
            And takes me for a ride
            I smile up to the sky,
            I know I'll be alright

The son, Jesus, He is on my side and He takes me for a ride. I am on the ride of a lifetime.
I smile, look up and KNOW I will be alright because only good things wait for me.

I Know.

Why do I know?

"And we know that in all things God works for the good of those who love him, who have been called according to his purpose." - Romans 8:28

Enjoy her singing and be uplifted by the closing verse.

Akhil

3 Comments

NiSco

11/19/2012 09:52:09 am

Beautifully done! Thank you.

Susan (Jeep) Jones

11/19/2012 12:43:19 pm

Hey Akhil...is this a forum where I can yell, scream, and express my feelings and the problem will go away? If so, I would like to say GO AWAY ALS AND LEAVE MY FRIENDS ALONE! Thank you...I feel much better! You know if it were possible to do that, you would have all kinds of screaming and expressing going on around you guys! You have so many people who love you and wish they could make all this go away. Well, I need to go blow my nose, wipe my eyes, and talk to God before I go to bed. I love all of you, Susan (by the way, I love the song!)

Sue Simons

12/1/2012 12:54:44 pm

Oh dear Akhil! Your words of crying out are so familar to me! When I was a child and abuse - both verbal and physical - I would cry out to the Lord "why!" and then it became "if You made me to only for this to keep happening, PLEASE take me Home!" I read the book of Psalms almost all the time! I would cry out to God and pray then allow my Bible to open to where it would. I was always amazed at how it never ceased to amaze me that the scripture it opened up to was exactly what I needed to hear! Usually it was words of comfort but occasionally, it would be words of reproach! In the last few years it's become more difficult to read the Bible except in electronic from - not nearly the same as when I would ask for God to speak to me from His word!

You can never lose faith that God has a plan for you in this world. It hurts to see how are body is breaking down - why!? How could this possibly be in His plan for me!? Then, if I listen quietly, I can hear Him say "oh, My child! this lesson is not to test your patience! This is to test those around you! Are they serving me by caring for you? It's not My desire for you to be hurting or in pain - nothing of evil can come from me - that is all satan! It's satan who feels you will break if he takes certain things from you! Don't break! I know you are my child, just as I knew that Job was my child! Never loose your faith in Me! I am always here for you!"

Hang in there -- we love you and will be here to pray with you! contact me at any time and I will be glad to pray with you! If you need / desire my cell # and / or email, please let me know and I will private message it to you!

Akhil and Laura Jhaveri

Applying the skills they've learned in over 20 years of marriage, this couple faces the challenges of ALS together. MND or motor neuron disease is deadly with no known cure. The Jhaveri family has to endure this battle and show the world God's love!

About Akhil

His journey is described in the "ALS and Akhil " tab