Me and ALS
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Ramblings

7/10/2017

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​Laura asked me to share my thoughts with... everyone. I simply asked, “Why would anyone care to hear the ramblings of a mad man?"
 
She told me, “Write. You must have thoughts racing through your mind.”
 
I shook my head, clearly indicating,  “No.” I pointed out that typing one letter at a time is beyond frustrating!
 
Then she gave me that look every husband has received, “Ok, you can do what you want, don't consider my feelings."  When she really means, “Be reasonable, do it my way!" Ladies, don't bother denying this is part of your arsenal. 

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Here we go... fire hydrant meet glass:
 
~A simple yet profound observation - watching my daughters express being bored with being children and are in a rush to become adults, and then long to be children again. I was no different; however, the youth of today seem to have an accelerated entry into adulthood.
 
~People in general sacrifice their health to make money and then sacrifice their money to restore their health. Perhaps my MS and ALS are precipitates of my choices. PERHAPS. Or they are part of being in a fallen world. 
 
~I’ve learned that what I have in my life pales in comparison to who I have in my life.
 
~To my children, actually to all children, actually to everyone: Nothing good will come out of comparing yourself to others. You're basing the comparison on a snapshot of their life. Photos can be deceptive.
 
~I have learned that it only takes a few seconds to cause deep wounds in persons we love, and that it takes many years to heal them. So ask yourself, “How will this argument or scolding end?" Put yourself in that person’s shoes. Ask yourself, “Would you like to be spoken to that way?" Remember, words are like pawns on a chess board, they can't be moved back! 
 
~Learn to forgive by practicing forgiveness. It is important to forgive yourself. Give yourself a break, even Jesus blew it with one out of twelve of his followers. (Calm down, just joking.)

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~Benjamin Franklin said, “Wealth comes from increasing income and decreasing wants.” That is wise advice. I want to focus on "wants”.   You have the same disease that I have. I’m not talking about ALS, I am talking about the demon called “flesh” which is always hungry. The flesh wants food, power, money, sex, pleasure and comfort right now! 
 
One word to describe this demon: INSATIABLE. This demon lies with promises of a better tomorrow if you sacrifice today - your family, your relationships, even your health!
 
How can this demon be exorcised?  If we turn to the Bible, Jesus taught a remedy.  He says, “Deny yourself, pick up your cross and follow me!"  I struggle with this one because I have been forced to give up most activities that gave me pleasure from talking, eating and drinking, to just scratching myself. Regardless, I still have a ways to go.
 
Surprisingly, the more I give up, the more I experience freedom. I am becoming aware that my "wants" are pretending to be "needs"!   In other words, I have very few needs for me to live. (I have to admit that I would love to be able to scratch myself!)
 
~Money: People have said, "According to the Bible, money is the root of all evil." Agree, yes or no? If you disagreed, you would be correct.
 
The Apostle Paul, in his first letter to his young disciple, Timothy, said, “For the love of money is a root of all kinds of evil. Some people, eager for money, have wandered from the faith and pierced themselves with many griefs.”  (1 Timothy 6:10). 
 
Money vs. loving money itself is the problem. Think about King Solomon or King David, they were blessed by God with wealth. God is interested in the heart. Money provides options, having money gives you flexibility.  

​This text took me, literally, one month to type. I got tired and quit many times but something inside kept urging me to keep typing. Someone needed this message. My question is, did this speak to YOU? 

11 Comments



    The video is Akhil's journey with ALS.  Painful to see but the faith his family shows is uplifting.
    ​
    God continues to show his love for us through his people.  Thank you to everyone who has reached out to us, prayed for us, visited Akhil, brought us a meal and served us however God led you to serve.  Continue to follow those urgings from God in serving those who are struggling.

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    Akhil and Laura Jhaveri

    Applying the skills they've learned in over 20 years of marriage, this couple faces the challenges of ALS together. MND or motor neuron disease is deadly with no known cure.  The Jhaveri family has to endure this battle and show the world God's love!

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